Welcome to
Sarah Christianson's
Page of Dementia Writings
by people with Dementia
  and/or their caregivers or family members
I've lost my mind -
If you see it, grab it -
It's too little to be out on its own.
- unknown
A new day has begun.

Morning
The strengthening Sun firms resolve
As the slouching gait of
Dawn becomes, once more,
Upright, keen and driven.
Doubts of worth and spirit bow
Before the camouflage of normalcy.
Me! As I was, am now and perhaps
ever more shall be.

Noon
No shadows, those stealers of my self belief.
Do you notice how they’ve fled
From stumbling feet and timid response and frightened mind?
‘Walk in the light’.---- The Vicar robed and me exposed
To strengths and truths.
This midday sun,
Once more, a covering makes.

Afternoon
The walk is long.
Tired body and mind rejecting once more
Confidence in self----belief in the light,
As shadows return;  and the ever waiting darkening
Creeps to entangle and dispel
Those rays of warmth and strength and me.

Night
Wait! Is that a light I sense
Amid the murk and deep unknowing?
A childhood playmate
come to share a tale
Or a falling star descending from
blackness to the unlit void.
There are no shadows now.
The day is done.
Brian McNaughton
Copyright © 2007  Sarah Christianson. All rights reserved. The writings, artwork, images, and layout of such (including but not limited to) those on this web site created by Sarah Christianson and others are protected by copyright law and may not be downloaded, reproduced, or republished.        
Any and all writings, graphics, etc from others have been placed here with permission.
Who know the road home would be so long and filled with shadows?

Hand in hand we go down the road together.

I wonder if you will remember our journey or only that you were not alone.

Will I remember the way when it's my turn?

Debra K Cowden
Life

Life is a roller coaster
It can take you up
and it can let you down
it can move you in circles
and make you throw up
till you think your gonna die
it can move fast
it can coast really slow
it can lift us
to our highest point in our lives
like the birth of a child
or a wedding day
and then knock us back down
with a funeral or a fire
but our lives ARE like a roller coaster
It is up to us how we ride
So, do we enjoy the good days?
And forget about the bad?
Come, sit down
And I'll ride with you
and maybe we can share a few laughs
But where ever this roller coaster goes
Be it up or down
Remember ,
You are NEVER alone

                           by Lorraine McCain
Dementia and the Linen Closet

Walked into the bathroom and opened the door
The cupboard was tidy from ceiling to floor
How could this be?  It should be a mess
Am I in the right house?  It leaves me to guess

The blankets were there in a very neat stack
So were the pillows in a row in the back
Towels folded neatly all faced the same way
Wash cloths and hand towels on lovely display

Sheets were matched up and looking real good
Pillowcases on top of them just as they should
All extra products in a row on the floor
Cleaners and TP and tissues galore

My confusion was growing, just how could this be?
I went to get Vince just so he could see
He hugged me and smiled, "It's looking just right"
"Don't you remember?  You cleaned it last night!"

Jean Opalka
You ask me a question
As the light slowly begins to turn on inside my head
I begin to answer
the words start to come out
you look at me like you're confused
I know it must not be coming out quite right
my heart begins to sadden
I repeat myself, slower this time to speak my mind correctly
you sigh
with a saddened heart and mounting frustration I keep trying
I know I should be able to express myself
seeing the frustration mounting within you
my heart sinks
I want to crawl back in my hole and be silent
I know that I am speaking what's on my mind
this is my mind
jumbled like a tossed salad
I'm doing the best I can
Sarah Christianson
August 2006
The Alzheimer Prayer

Dear Lord, I come to you in prayer as I need your help
You see, I use to be a bright, intelligent and caring person
I use to care for the sick, I was a Wife and a Mother
I was the caretaker of all things

I was there when someone needed a shoulder to cry on
I was always loving and strong
I was there when someone needed a laugh
I was there to tend the hurts
I was there to make the world keep spinning

But you see Dear Lord, all of that has changed
As I am now alittle slower than use to be
I still care, but many times what I say comes out all wrong
I am still a Wife and a Mother, but now they take care of me

I do most of the crying now
I don't always know how to show my love and I have become weak
I still laugh alot, but mostly at myself
Seems at times, I cause more hurt than I help
No matter what I do, I feel that I am spinning out of control

I am here to ask you Lord, I know we can't change things back to
what use to be
But maybe, every once in awhile just maybe a glimpse of who I was
will appear, even if its just a twinkle in my eye
Let my family know that I am still me, I just have a disease
and it has taken me to another place
A place that is dark and full of shadows and unknown places
Unfamiliar faces and voices

Let them know that I need their touch from time to time
Maybe a hug or a squeeze or a kiss on the cheek
Someday I may wander into those shadows with no return
Let them know that it is okay, because where I am going
from here is a place where I will never forget
to remember again, I will never be sad or lonely
and I will have the biggest smile upon my face as I wait for
them to follow when they come into the shadows

One more thing Dear Lord before I forget, if I can no longer speak
Will you let them know that I love them
and though I may have changed, I am still the same me.
Tracy Mobley
My forgetter's getting better,
  Its my rememberer that's broke.
  To you that may seem funny
  But, to me its no joke.
 
  For when I'm 'here' I'm wondering
  If I really should be 'there'
  And, when I try to think it through, I           haven't got a prayer!
 
  Often I walk into a room and say
  'Now what am I here for'
  I wrack my brain, but all in vain!
  A zero is my score.
 
  At times I put something away
  Make sure its safe, but, gee!
  The person that its safest from
  Is generally me.
 
  When shopping I may see someone.
  Say "Hi' and have a chat
  Then, when the person walks away
  I ask 'now who was that'?
 
  Yes, my forgetter's getting better
  While my rememberer is broke,
  And it's driving me plumb crazy
  And that isn't any joke.

unknown author
You Are A Miracle

You are a child of Creation, a reflection of God.

No one can steal your beauty or reduce your worth
unless you let them.

Don't let them.

You are a miracle of God's love.

A miracle!

Never look at yourself and see anything less.

Your life is not a random stroke of chance.
You are part of a sovereign plan,
loved into existence for eternity.

Let the fire in your soul, live and love,
leap and laugh with joy.

And for the short time you walk upon this earth,
always remember...

You are the light of the world!

© 2003 Terri McPherson
Windsor, Ontario, Canada
WiseHearts.Com

You are the light of the world.
A city on a hill cannot be hidden.
Matthew 5:14
Tell Me Doctor ...

Tell me doctor, on which minute, on which hour, on which day, of which month, which year did I develop Alzheimer's disease? That was more than ten years past. Had I come to you daily years before I developed even the slightest symptom notion could you tell me when I had crossed the line? Precisely what marks the demarcation? What measuring stick would give the precise instance that I had passed the boundary? Had I been wired and monitored by the most sophisticated space age devices round the clock could a line be drawn on graph paper that would have shown the "a haw moment" time slice?

No?
You can't?
Why?

I think it is much like trying to determine which snowflake caused a roof to collapse. Surely one of them was too much and the beams could no longer stand the strain. But I think that any structural engineer would say that it is not simply a load factor but also a time factor as well.

Me think that even pondering such thoughts tells me that there is not much more space on the graph paper to plot either the x-axis or the y-axis of my future. Does anyone have more graph paper?

Ben Stevens
Irving TX USA
An Aricept Anthem

We are not the hollow men.
We are not stuffed!
When we chat together,
Our heads are full of hope.
Whispering amongst ourselves,
We find our voices louder.
Edging to our destinies,
We leave a trail behind.

Know this:
We may not have forever,
But we reclaim our "present."
Watch us!
Our stream will soon be river,
Then a river in spring flood.
Legions come behind us,
Define our growing voice.
Spread the table wider, please
For we demand a choice!

--- Carole Mulliken 3-19-01
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Dementia Home Page
Dementia Links
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What you don't see

I clean off my table
Then feel the pressure
Within my head

I fill out papers
For the Dr, Attny or SSD
My head begins to ache

I go to the bathroom
How long have I been sitting
Did I already go or not

I see the toilet paper is running low
By the time I turn around
The thought is gone
I will not remember until I go again

~*~

It's coming, I can feel it
The fog that clouds my head

It tires me, confuses me
What was I going to say?

Sarah Christianson
October 2006
Untitled

We talk, we love
We laugh, we reminise

I explain what it is and will become

You don't see any sign
Of the disease
That has changed my life
So drastically

Keep watching

Sarah Christianson
October 2006